29 Mar NHS England Learning Disability and Autism Forum Update
Here is the latest email update from NHS England Learning Disability and Autism Forum. It tells you about ways you can get involved in their work.
Survey about how the NHS shares information about support needs
The NHS is working to improve the way it shares information about the reasonable adjustments people have the right to.
Reasonable adjustments are changes to the way a service works with someone so they have an equal chance to get healthcare.
The NHS is working on ways of sharing information using NHS computer records.
The work is being tried out first for people with a learning disability, and then it will be done for everyone else including autistic people.
We want to know what you think about this work.
The survey closes on 30 March.
Family carer event – Ask Listen Do
Ask Listen Do is an NHS project to make it easier for people to give comments and make complaints.
There is an event in Bristol for family carers of people with a learning disability, autism or both about this work.
The event is to design resources to support family carers to give comments and make complaints.
The event is on 28 March from 10.00 until 3.00.
To book a free place and get help with travel arrangements contact Diane on 07736 484378 firstname.lastname@example.org
Survey for family carers – your experience of personal health budgets
Personal health budgets are money that covers some people’s health and social care with one budget.
They are also called integrated personal budgets.
We want to know about people’s experience of personal health budgets and there is a survey asking about this.
This survey is aimed at family carers – it is not in easy read.
The survey closes on 30 April.
Mental health resources to support autistic children
New online resource for families, carers and professionals providing advice and guidance to support the access of children on the autism spectrum to community child and adolescent mental health services (CAMHS).
Poo and you!
Dimensions have produced a short film called Poo & You about the importance of getting to know your poo to stay healthy. To watch the film click here
Diabetes UK have resources and tools to improve care for people with diabetes and a learning disability. https://www.diabetes.org.uk/Professionals/Resources/shared-practice/for-people-with-learning-disability
Find out more about the NHS England Learning Disability and Autism Forum-https://www.england.nhs.uk/learningdisabilities/get-involved/